Stephanie Susan's Story

 

When I first started my period around the age of 13 the cramps and pain were very bad, but my mom told me that it was normal. Around 15/16 I went on birth control pills which helped a lot with the pain but in 2016 I started having random cramping. I went to my doctor who sent me for an ultrasound that came back saying they found a myometrial cyst. Though the cramping stopped not long later so we didn’t do anything about it.

In 2019, I had a lot of burning pains for about a week after my period had ended. A week progressed to 2 weeks and so I made an appointment with my family doctor. I got sent for another ultrasound, read by a different doctor to the last, and ending up being told I had signs of an adenoma.  I was then referred to a gynaecologist. I found he didn't listen to anything I had to say, telling me that most of my symptoms were not related to an adenoma. He told me it would be weird for somebody my age to have adenomyosis and that it’s usually seen in people 45 or older. He sent me for an MRI which I waited a couple of months for, and in the meantime he put me on birth control full time, telling me I could have a period once every 6 months if I chose to.

While waiting for my next appointment my cramping and pain did improve. Before full time birth control, I had pains all the time, every single day between my periods (pains ranged from burning, stabbing, a heavy bowling ball feeling, lightening crotch, a sudden pain in my rectum. You name it, I had that pain). It was rare for me to have even 3 days without pain, so being on birth control full time did help tremendously.

When I went back to the doctor he asked me how the pain was since being on birth control full time. I let him know …


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Two years of leaving in tears and I still don’t truly have an answer
— Stephanie Susan
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