Endometriosis impacts people in so many different ways.
Each person living with this disease
has a unique story to tell.
We have collected experiences from people around the world, at different stages of illness and with varying life circumstances, to help you feel less alone.
If you would like to share your own #EndoStory with our
community, you can email us at hello@frendo.co.uk.
Tanya’s Story
as a doctor herself, Tanya was trained to support patients, however, her symptoms were dismissed time and time again, until she raised the idea of endometriosis herself.
Alex's Story
He stopped his exam, looked me in the eyes and said “I don’t see anything wrong; the pain is in your head.
Iqra's Story
For the longest time, I felt like I was just being a dramatic person, and all of this was normal
Mōrena's Story
I didn’t know much about Endometriosis until I realised that it could be the cause of my many issues
Ellie’s Story
I remember thinking ‘surely not’, this happens to other women. Not me. Surely not
Ellen's Story
I was pretty upset with the diagnosis as immediately the fear set in around my fertility.
Sophie's Story
When you know the feelings aren’t normal but all the tests come back clear you do start to think it’s in your head
Tea’s Story
Trans men and nonbinary people with periods (like me) often avoid going to the doctor when it comes to our private parts
Alli’s Story
My anxiety levels continued to increase and I had severe panic attacks, during which I genuinely thought I was losing my mind
Maeve’s Story
I thought it was normal and that I just had worse ones than most people or that I was a bit too sensitive to them.